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Introduction:
Many patients with cerebral palsy (CP) suffer chronic pain as one of the most limiting factors in their quality of life. In CP patients, pain mechanisms are not well understood, and pain therapy remains a challenge. Quantitative sensory testing (QST) might provide unique information about the functional status of the somatosensory system and therefore better guide pain treatment.
Objectives:
To understand better the underlying pain mechanisms in pediatric CP patients, we aimed to assess clinical and pain parameters, as well as QST profiles, which were matched to the patients' cerebral imaging pathology.
Patients and methods:
Thirty CP patients aged 6–20 years old (mean age 12 years) without intellectual impairment underwent standardized assessments of QST. Cerebral imaging was reassessed. QST results were compared to age- and sex-matched controls (multiple linear regression; Fisher's exact test; linear correlation analysis).
Results:
CP patients were less sensitive to all mechanical and thermal stimuli than healthy controls but more sensitive to all mechanical pain stimuli (each p < 0.001). Fifty percent of CP patients showed a combination of mechanical hypoesthesia, thermal hypoesthesia and mechanical hyperalgesia; 67% of CP patients had periventricular leukomalacia (PVL), which was correlated with mechanic (r = 0.661; p < 0.001) and thermal (r = 0.624; p = 0.001) hypoesthesia.
Conclusion:
The combination of mechanical hypoesthesia, thermal hypoesthesia and mechanical hyperalgesia in our CP patients implicates lemniscal and extralemniscal neuron dysfunction in the thalamus region, likely due to PVL. We suspect that extralemniscal tracts are involved in the original of pain in our CP patients, as in adults.
Qualität in der häuslichen Pflege : Ansätze zu einer lebensweltorientierten Weiterentwicklung
(2014)
Background: For more than 30 years, there has been close cooperation between Japanese and German scientists with regard to information systems in health care. Collaboration has been formalized by an agreement between the respective scientific associations. Following this agreement, two joint workshops took place to explore the similarities and differences of electronic health record systems (EHRS) against the background of the two national healthcare systems that share many commonalities.
Objectives: To establish a framework and requirements for the quality of EHRS that may also serve as a basis for comparing different EHRS.
Methods: Donabedian's three dimensions of quality of medical care were adapted to the outcome, process, and structural quality of EHRS and their management. These quality dimensions were proposed before the first workshop of EHRS experts and enriched during the discussions.
Results: The Quality Requirements Framework of EHRS (QRF-EHRS) was defined and complemented by requirements for high quality EHRS. The framework integrates three quality dimensions (outcome, process, and structural quality), three layers of information systems (processes and data, applications, and physical tools) and three dimensions of information management (strategic, tactical, and operational information management).
Conclusions: Describing and comparing the quality of EHRS is in fact a multidimensional problem as given by the QRF-EHRS framework. This framework will be utilized to compare Japanese and German EHRS, notably those that were presented at the second workshop.
Im Mittelpunkt des vorliegenden Beitrags stehen thematische Schwerpunkte, methodische Zugänge und Entwicklungspotentiale
qualitativer Wirkungsforschung, die sich im Kontext einer experimentell-naturwissenschaftlich dominierten Interventionsforschung
entwickelt. Eine Analyse ausgewählter aktueller Studien zur Wirkung physio-, ergo- und sprachtherapeutischer sowie
pflegerischer Interventionen der Schlaganfallrehabilitation verdeutlicht die Dominanz des Studienformats einer auflistenden
qualitativen Inhaltszusammenfassung. Qualitative Interventionsstudien dieses Formats werden weitgehend ohne Bezugnahme
auf etablierte qualitative Forschungstraditionen realisiert. Sie sind durch eine fallübergreifende Auflistung von Interviewaussagen
zu ausgewählten Themenbereichen gekennzeichnet. Basierend auf in den Pflegewissenschaften entstandenen Typologien der
Ergebnisse qualitativer Studien, werden Potentiale zur Weiterentwicklung der Komplexität und interpretativen Erklärungskraft
qualitativer Interventionsforschung vorgestellt. Ihre methodologische Fundierung und Qualitätssicherung werden als zentrale
Entwicklungsaufgaben diskutiert.
Qualitative Ansätze in der teilhabeorientierten Aphasie-Diagnostik: Kennzeichen und Anwendungen
(2015)
Um eine an Teilhabe und Selbstbestimmung orientierte Sprachtherapie planen, gestalten
und bewerten zu können, sind vielfältige und detaillierte Informationen über die
Teilhabesituation, die Teilhabeziele und das individuelle Erleben eines Menschen mit
Aphasie grundlegend. Eine therapierelevante und veränderungsorientierte Diagnostik
braucht methodische Zugänge, die der Individualität, Kontextbezogenheit und Subjektivität
menschlicher Teilhabe gerecht werden können. Nach Auffassung der Autorinnen
bietet die qualitative Sozialforschung der Sprachtherapie hierfür ein viel versprechendes
methodisches Repertoire. Der vorliegende Beitrag skizziert grundlegende Kennzeichen
dieses Forschungsstils, der Sprachtherapeutinnen und -therapeuten oftmals
wenig vertraut ist. Ausgewählte Ansätze einer qualitativen teilhabeorientierten Aphasie-
Diagnostik werden beispielhaft vorgestellt.
Schlüsselwörter: Aphasie, Teilhabe, Diagnostik, Evaluation, qualitative Methoden,
Interview, Ethnografie, Konversationsanalyse
Qualitative Ansätze in der teilhabeorientierten Aphasie-Diagnostik: Kennzeichen und Anwendungen
(2015)
Um eine an Teilhabe und Selbstbestimmung orientierte Sprachtherapie planen, gestalten und bewerten zu können, sind vielfältige und detaillierte Informationen über die
Teilhabesituation, die Teilhabeziele und das individuelle Erleben eines Menschen mit
Aphasie grundlegend. Eine therapierelevante und veränderungsorientierte Diagnostik
braucht methodische Zugänge, die der Individualität, Kontextbezogenheit und Subjektivität menschlicher Teilhabe gerecht werden können. Nach Auffassung der Autorinnen
bietet die qualitative Sozialforschung der Sprachtherapie hierfür ein viel versprechendes methodisches Repertoire. Der vorliegende Beitrag skizziert grundlegende Kennzeichen dieses Forschungsstils, der Sprachtherapeutinnen und -therapeuten oftmals
wenig vertraut ist. Ausgewählte Ansätze einer qualitativen teilhabeorientierten Aphasie-Diagnostik werden beispielhaft vorgestellt.
To ensure the quality of long-term care services has been one of the key elements of German long-term care insurance since its implementation in 1995. A joint agreement between insurers and service providers served as the baseline for quality assurance. Monitoring and control of quality in institutional and home based long-term care was performed by the insurers’ Medical Board. As a result of problems in some long-term care facilities reported in the media the Long-term Care System Reform Act of 2008 contained several provisions to ensure and improve the quality of services. The obligatory use of expert standards for the performance of particular nursing interventions and the establishment of a system of public reporting were the first measures implemented. The development of quality indicators has also been initiated. These routes to quality, their anticipated effects and remaining challenges will be addressed in this article.
The primary objective of this study was to determine the structural and known-group validity as well as the inter-rater reliability of a test battery to evaluate the motor control of the craniofacial region. Seventy volunteers without TMD and 25 subjects with TMD (Axes I) per the DC/TMD were asked to execute a test battery consisting of eight tests. The tests were video-taped in the same sequence in a standardised manner. Two experienced physical therapists participated in this study as blinded assessors. We used exploratory factor analysis to identify the underlying component structure of the eight tests. Internal consistency (Cronbach's α), inter-rater reliability (intra-class correlation coefficient) and construct validity (ie, hypothesis testing-known-group validity) (receiver operating curves) were also explored for the test battery. The structural validity showed the presence of one factor underlying the construct of the test battery. The internal consistency was excellent (0.90) as well as the inter-rater reliability. All values of reliability were close to 0.9 or above indicating very high inter-rater reliability. The area under the curve (AUC) was 0.93 for rater 1 and 0.94 for rater two, respectively, indicating excellent discrimination between subjects with TMD and healthy controls. The results of the present study support the psychometric properties of test battery to measure motor control of the craniofacial region when evaluated through videotaping. This test battery could be used to differentiate between healthy subjects and subjects with musculoskeletal impairments in the cervical and oro-facial regions. In addition, this test battery could be used to assess the effectiveness of management strategies in the craniofacial region.
BACKGROUND:
There is little knowledge regarding the association between psychological factors and complex regional pain syndrome (CRPS) in children. Specifically, it is not known which factors precipitate CRPS and which result from the ongoing painful disease.
OBJECTIVES:
To examine symptoms of depression and anxiety as well as the experience of stressful life events in children with CRPS compared with children with chronic primary headaches and functional abdominal pain.METHODS: A retrospective chart study examined children with CRPS (n=37) who received intensive inpatient pain treatment between 2004 and 2010. They were compared with two control groups (chronic primary headaches and functional abdominal pain; each n=37), who also received intensive inpatient pain treatment. Control groups were matched with the CRPS group with regard to admission date, age and sex. Groups were compared on symptoms of depression and anxiety as well as stressful life events.
RESULTS:
Children with CRPS reported lower anxiety and depression scores compared with children with abdominal pain. A higher number of stressful life events before and after the onset of the pain condition was observed for children with CRPS.
CONCLUSIONS:
Children with CRPS are not particularly prone to symptoms of anxiety or depression. Importantly, children with CRPS experienced more stressful life events than children with chronic headaches or abdominal pain. Prospective long-term studies are needed to further explore the potential role of stressful life events in the etiology of CRPS.
Hintergrund
International stellen präventive Hausbesuche (PHB) ein implementiertes Konzept dar. Aufgrund des demografischen Wandels und andauernden Fachkräftemangels werden alternative Versorgungsformen wie PHB benötigt. Ziel der PHB ist, älteren Menschen den Verbleib in ihrem Zuhause und somit ihre präferierte Lebensform möglichst lange zu ermöglichen.
Methodik
Im Rahmen des vorliegenden Scoping-Reviews wurde eine datenbankgestützte, systematische Literaturreche durchgeführt, um einen Überblick der Literatur über PHB darzustellen. Der Fokus der Literaturanalyse lag auf den Effekten PHB, die aus internationalen und nationalen Reviews abgeleitet werden konnten, nationale Studien dienten der Analyse des Konzepts PHB. Es wurden 9 internationale und ein nationales Review sowie 7 nationale Studien eingeschlossen.
Ergebnisse
Die PHB erzielen heterogene Effekte auf die Mortalität, den stationären Krankenhausaufenthalt, die Pflegeheimaufnahme, das Sturzereignis, den funktionellen Status und die Lebensqualität. Die Ergebnisse sprechen tendenziell dafür, dass durch die PHB Pflegebedürftigkeit hinausgezögert oder gar vermieden werden kann.
Schlussfolgerungen
Weitere Forschungsarbeiten zu PHB sind notwendig, um das bisherige Wissen zu ergänzen und mögliche Konzeptanpassungen für eine größere Akzeptanz der Zielgruppe sowie die deutschlandweite Implementierung zu erreichen. Zudem ist die Politik gefordert, die Finanzierung innerhalb Deutschlands sicherzustellen. In Deutschland sind PHB noch nicht flächendeckend implementiert, obwohl verschiedene Projekte in unterschiedlichen Kontexten auf einen anhaltenden gesellschaftlichen Bedarf für und Interesse an PHB hindeuten.
The global climate system is currently warming due to the increase in CO2 emissions caused by humans. Technically oriented efficiency strategies are seen more frequently as solutions to reach the European Union’s maximum two degrees Celsius target. Companies play an important role in limiting climate change and must either prepare for such consequences or adopt new strategies such as the sufficiency strategy.
This article will discuss how the sufficiency strategy and the promotion of sufficient living in the context of the tourism industry can contribute to reducing CO2 emissions. Most common approaches toward sufficient living found in literature will be identified, analysed and discussed. Based on chosen keywords, the most common approaches were identified through a literature review of relevant journals from 1989 to 2014. Four main research fields that can promote sufficient living and reduce CO2 emissions were identified. Based on the prospects of the companies, it is apparent that sufficient strategies are not only able to support a market-orientated corporate management but also promote sufficient living and thus reduce CO2 emissions.
Professionalization in low-threshold drug aid : between managerialism and practitioner knowledge
(2021)
Background
Against the background of a steadily increasing degree of digitalization in health care, a professional information management (IM) is required to successfully plan, implement, and evaluate information technology (IT). At its core, IM has to ensure a high quality of health data and health information systems to support patient care.
Objectives
The goal of the present study was to define what constitutes professional IM as a construct as well as to propose a reliable and valid measurement instrument.
Methods
To develop and validate the construct of professionalism of information management (PIM) and itsmeasurement, a stepwise approach followed an established procedure from information systems and behavioral research. The procedure included an analysis of the pertaining literature and expert rounds on the construct and the
instrument, two consecutive and comprehensive surveys at the national and international level, exploratory and confirmatory factor analyses as well as reliability and validity testing.
Results
Professionalism of information management was developed as a construct consisting of the three dimensions of strategic, tactical, and operational IMas well as of the regularity and cyclical phases of IM procedures as the two elements of professionalism.
The PIM instrument operationalized the construct providing items that incorporated IM procedures along the three dimensions and cyclical phases. These procedures had to be evaluated against their degree of regularity in the instrument. The instrument proved to be reliable and valid in two consecutive measurement phases
and across three countries.
Conclusion
It can be concluded that professionalism of information management is a meaningful construct that can be operationalized in a scientifically rigorous manner. Both science and practice can benefit from these developments in terms of improved self-assessment, benchmarking capabilities, and eventually, obtaining a better understanding of health IT maturity.