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Institute
Pregnancy loss is the most common complication in pregnancy. Yet those who experience it can find it challenging to disclose this loss and feelings associated
with it, and to seek support for psychological and physical recovery. We describe our process for
interleaving interviews, theoretical development, speculative design, and prototyping Not Alone to
explore the design space for online disclosures and
support seeking in the pregnancy loss context.
Interviews with 27 women who had experienced pregnancy loss resulted in theoretical concepts such as
“network-level reciprocal disclosure” (NLRD). We discuss how interview findings informed the design of
the Not Alone prototype, a mobile application aimed at enabling disclosure and social support exchange among those with pregnancy loss experience. The Not Alone prototype embodies concepts that facilitate NLRD: perceptions of homophily, anonymity levels, and selfdisclosure by talking about one’s experience and engaging with others’ disclosures. In future work, we will use Not Alone as a technology probe for exploring
NLRD as a design principle.