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Institute
Naturentfremdung
(2018)
Hintergrund: Im Zuge der weltweiten Flüchtlingsbewegungen ist in den letzten Jahren eine hohe Anzahl an geflüchteten Personen nach Deutschland gekommen. Laut amtlicher Statistik lebten Ende 2018 ca. 1.780.000 Schutzsuchende in Deutschland (Statistisches Bundesamt 2019). Der Anteil weiblicher Schutzsuchender beträgt ca. 37,4 Prozent. Zirka 51 Prozent der geflüchteten Frauen, die in Deutschland ankommen und Asyl beantragen, befinden sich im gebärfähigen Alter zwischen 15 und 45 Jahren (Statistisches Bundesamt 2019a; _b). Darüber, wie viele schutzsuchende Frauen schwanger eingereist sind oder zum Zeitpunkt ihres Aufenthaltes in der Erstaufnahmeeinrichtung schwanger geworden sind, liegen keine Daten vor. Ebenso fehlen bisher in Deutschland repräsentative gesundheitsbezogene Daten von Schutzsuchenden (Frank, Yesil-Jürgens & Razum et al. 2017). Insbesondere zu den gesundheitlichen Problemlagen und Bedürfnissen von schutzsuchenden Frauen im Bereich Schwangerschaft, Geburt und postpartaler Phase liegen keine Erkenntnisse vor (Bozorgmehr, Mohsenpour & Saure et al. 2016; Heslehurst, Brown & Pemu et al. 2018). Internationale Studien deuten allerdings darauf hin, dass die gesundheitsbezogene Bedarfslage schutzsuchender Frauen komplex ist (Gagnon, Zimbeck & Zeitlin et al. 2009;van den Akker & van Roosmalen 2016). Die systematische Identifizierung von Versorgungsbedarfen und eine bedarfsgerechte Versorgungsplanung sind deshalb derzeit kaum möglich (Mörath 2019). Aus rechtlicher Perspektive ist diese unbefriedigende Situation ebenfalls problematisch (Klotz 2018). Die Umsetzung des völkerrechtlich bindenden internationalen Rechts auf ein für sie [Anmerk. d. V. : die Person] erreichbares Höchstmaß an körperlicher und geistiger Gesundheit (BGBI. 1976), welches von Deutschland 1976 ratifiziert wurde, sowie des UN-Übereinkommens zur Beseitigung jeder Diskriminierung der Frau von 1979 (BGBI. 1985) und der in der EU-Richtlinie 2013/33/EU in Kapitel IV aufgeführten Bestimmungen für schutzbedürftige Personen erfordert für diese spezifische Personengruppe vielfache Bemühungen. Denn die Förderung und Verbesserung der sexuellen und reproduktiven Gesundheit bzw. Rechte von schutzsuchenden Frauen kann einen Beitrag zu ihrer gesellschaftlichen Integration nach sich ziehen (Janssens, Bosmans & Temmerman 2005). Zuzüglich zur rechtlichen Situation schutzsuchender Frauen gilt das Recht ihrer Kinder auf Gesundheit. Im Artikel 24 der UN-Kinderrechtskonvention (UN, Committee on the Rights of the Child 2013) ist dieses verankert und unterstreicht u. a. für die Vor- und Nachsorge relevante Versorgungsbereiche wie z. B. prä- und postnatale Versorgung der Mütter, Aufklärung über Gesundheit und Ernährung u. w. m. (Deutsches Institut für Menschenrechte 2017).
Problem: Familien in der ambulanten palliativen Situation unterliegen vielen Belastungen, welche bislang in Deutschland nur unzureichend erforscht wurden. Fragestellung: Wie kann die Situation von Familien in der ambulanten palliativen Betreuung auf Grundlage des aktuellen Forschungsstands für eine schriftliche Befragung in Deutschland konzeptualisiert werden? Methode: Basierend auf einer Literaturrecherche wurden Publikationen identifiziert, welche die Bedürfnisse und Belastungen der Familien untersuchten. Die Treffer wurden inhaltlich analysiert und kategorisiert. Auf dieser Grundlange wurden Instrumente recherchiert, welche die relevanten Kategorien adressieren. Die daraus ausgewählten Instrumente wurden zu einem Screeninginstrument zusammengefasst. Ergebnisse: Die 529 relevanten Publikationen beinhalten 38 Themengebiete in acht Kategorien. Hieraus wurde ein 71 Items umfassendes Screeninginstrument zusammengestellt, welches die palliative Situation der Familien in Deutschland erheben soll.