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Not Alone: Designing for Self-Disclosure and Social Support Exchange After Pregnancy Loss

  • Pregnancy loss is the most common complication in pregnancy. Yet those who experience it can find it challenging to disclose this loss and feelings associated with it, and to seek support for psychological and physical recovery. We describe our process for interleaving interviews, theoretical development, speculative design, and prototyping Not Alone to explore the design space for online disclosures and support seeking in the pregnancy loss context. Interviews with 27 women who had experienced pregnancy loss resulted in theoretical concepts such as “network-level reciprocal disclosure” (NLRD). We discuss how interview findings informed the design of the Not Alone prototype, a mobile application aimed at enabling disclosure and social support exchange among those with pregnancy loss experience. The Not Alone prototype embodies concepts that facilitate NLRD: perceptions of homophily, anonymity levels, and selfdisclosure by talking about one’s experience and engaging with others’ disclosures. In future work, we will use Not Alone as a technology probe for exploring NLRD as a design principle.

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Author:Nazanin AndalibiORCiD, Andrea Forte, Gabriela Marcu, Tim Moesgen, Rebecca Mullin
Title (English):Not Alone: Designing for Self-Disclosure and Social Support Exchange After Pregnancy Loss
Parent Title (English):CHI EA '18 Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems
Place of publication:New York, USA
Document Type:Conference Proceeding
Year of Completion:2018
Release Date:2018/05/29
Tag:Pregnancy Loss; design; grief; miscarriage; social media
To order the print edition:1741204976
Faculties:Fakultät IuI
DDC classes:600 Technik, Medizin, angewandte Wissenschaften / 610 Medizin, Gesundheit
Review Status:Veröffentlichte Fassung/Verlagsversion